Aila Coulmann

As a volunteer with KCNQ2 e.V., I am responsible for Scientific Communications & Patient Advocacy. In this role, I work closely with families, researchers, and clinicians to share knowledge on KCNQ2-related disorders, strengthen the community, and highlight scientific progress.

My activities include:

• Co-authoring the association’s scientific newsletters to make the latest research accessible to families and professionals
• Raising awareness of KCNQ2-related disorders and their impact on families
• Supporting fundraising initiatives to advance research and therapy development
• Connecting families, clinicians, and researchers within the KCNQ2 community
• Contributing to projects, campaigns, and resources that strengthen patient support